Nearly 50 youth hockey players with disabilities took to the ice in Ballston this week to sharpen their skills with Washington Capitals star Alex Ovechkin.
On Wednesday, members of the American Special Hockey Association (ASHA) convened at the MedStar Capitals Iceplex to spend several hours learning various skating techniques and skills from Ovechkin and other Capitals players, including Aliaksei Protas, Matthew Phillips and Alexander Alexeyev.
Ovi has been hosting this Caps-sponsored clinic for ASHA — which supports individuals with intellectual, developmental and physical disabilities through hockey — for a decade, though it took a hiatus during the pandemic.
“Ovechkin has been an ASHA ambassador since the first skate in 2014 and most recently made a donation to the ASHA to help cover ice costs for 136 special hockey teams across the United States,” per a Capitals press release. “The donation supported more than 5,260 athletes and nearly 400 coaches.”
"It's very important for the community. We've been so close to each other for 10 years … kids happy, parents happy, so we're happy as well."@ovi8 chats with @tarynbray on 'The #Gr8 Skate' with @specialhockey today at MedStar Capitals Iceplex. #ALLCAPS pic.twitter.com/Dx4YHEim9Z
— Washington Capitals (@Capitals) January 10, 2024
ASHA Executive Director Jennifer O’Brien told ARLnow that while the donation was vital for the organization, Ovechkin’s personal commitment — in terms of time, money and energy — is especially significant.
“The big thing people should know is that sometimes people donate things and they kind of do it through the organization or whatever,” O’Brien said. “He does this personally. And so we take it personally and appreciate him for that reason.”
Established in 2007, ASHA currently serves over 8,000 members, representing 136 special hockey teams nationally. There are three ASHA teams in the D.C. area, per the release.
Most ASHA members who attended the clinic came from either the D.C. region or other East Coast locales, said O’Brien.
In addition to his work with ASHA, Ovechkin established “Ovi’s 8’s” in 2006, a program dedicated to providing tickets to Capitals games for underprivileged children.
“Since then, more than 5,700 individuals have had a chance to see a game free of charge, including many ASHA participants,” the team said.
For the last decade, Arlington Public Schools has tried to increase the time students with disabilities spend with their typically abled peers.
Creating a more inclusive environment can benefit students with disabilities and their peers, according to some studies — though not all — as well as new APS academic data. But it is easier said than done.
As of the 2020-21 school year, 67% of students with disabilities spent 80% of their time in the general education setting. The students who make up the difference might spend more time in a small-group setting or they may be placed in county-wide programs.
The 67% figure put APS 5 percentage points below state targets that year and 13 percentage points below a goal it set in its 2018-24 strategic plan.
Progress toward this goal has been sporadic because APS lacked a concrete plan and system-wide buy in to make these changes, according to old APS reports and interviews ARLnow conducted.
“The basic punchline is that they set the goal… and then they didn’t do anything differently for the subsequent five-plus years,” says parent David Rosenblatt, the former chair of Arlington Special Education Advisory Committee. “There was no meaningful plan except goals on paper.”
There are new signs of progress, though.
This year, the Office of Special Education is working with leaders of schools with inclusion rates below 65% to develop goals around increasing inclusion and strategies to help staff with this work, according to APS spokesman Frank Bellvia.
APS is in the early stages of hiring a consultant to devise system-level changes. It issued a request for proposals this summer and is re-issuing a new one this fall.
Previous consultant reports from 2013 and 2019 said Arlington could improve its inclusion efforts but left it to the school system to change. The 2019 report gave APS low marks for its progress since 2013.
APS confirmed its 2024 goal will transfer to future strategic plans.
“Supporting our [students with disabilities] is a core value for the district, and it will take some time to achieve this goal as it involves several factors,” Bellavia said. “Some of these include building an inclusive mindset with staff and within the community, staffing needs, and master schedules at the school.”
What inclusion looks like today
For APS, the good news is that, in 2019, a majority of students receiving services for their disability said they were treated fairly, welcomed in school and able to participate in afterschool activities.
On the other hand, 30% said this was not their experience and 35% said only some or none of their teachers have high expectations for them or “that they don’t know,” per the report.
For special education attorney Juliet Hiznay, students with disabilities can benefit from the higher expectations set in general education classrooms than in separate programs.
“The rationale for [these programs] is that they need a lower ratio, fewer distractions, modified curriculum,” she says. “The problem with that is that we’re looking at supporting a programmatic model rather than taking the student and saying, ‘How do we include her? What is she capable of?’”
Separate tracks may also contribute to fewer general education teachers who receive sufficient training to teach students with disabilities. The 2019 report found only 45% of general education teachers felt equipped to teach this population.
Annually, APS reports to the state how much time students with disabilities spend in with their typically abled peers in general education classrooms, as well as at lunch, recess, study periods, libraries and field trips.
Arlington County is working on plans to make safety and accessibility upgrades a trio of local streets.
Some of the changes could include adding sidewalks where there are none, removing obstructions from existing sidewalks, and extending curbs — known as a “bump-out” — to make shorter pedestrian crossings.
Residents can learn more about this batch of “Neighborhood Complete Streets” projects in the Arlington Mill, Westover and Arlington Heights neighborhoods during a virtual meeting this coming Monday, May 8. t 7 p.m.
The projects were selected from more than 200 nominees by the Neighborhood Complete Streets Commission in February. The commission identifies and recommends for funding projects to improve the experience of cyclists and pedestrians — particularly those who need ramps or wider sidewalks to get around, such as people using wheelchairs or pushing strollers.
“Sidewalks free and clear of obstructions, streetlights, Americans with Disabilities Act-accessible curb ramps, safe space for bikes and appropriate street widths — these are all elements of a complete street,” per a county webpage.
Next week’s meeting will cover three projects selected after a competitive ranking process that considered gaps in sidewalks, heavy pedestrian use, speeding problems and surrounding socio-economic diversity.
On 8th Road S. between S. Dickerson and S. Emerson streets, in the Arlington Mill neighborhood, the county proposes building curb ramps accessible to people with disabilities and installing pedestrian bump-outs and other relevant signage and pavement markings.
“Existing conditions include complete sidewalks on both sides of the street and large intersections, which increase crossing distances for people walking,” per a project webpage. “Curb ramps are blocked by parked vehicles.”
The commission recommended 8th Road S. because of its crash history, traffic, high residential population, proximity to transit and location within a census tract that is lower income and more diverse.
On 14th Street N., in the Westover neighborhood, the county will install an accessible sidewalk for people walking between N. McKinley Road and the intersection with N. Ohio Street.
Arlington proposes installing sidewalk, curb and gutter, accessible curb ramps and new signage and pavement markings on the north side of the street.
The street won out over others because it is close to schools, transit and bike facilities but lacks consistent sidewalks, according to a project webpage.
Lastly, S. Irving Street near Thomas Jefferson Middle School is set to get an accessible, unobstructed sidewalk between 2nd and 6th Street S. The upgrades will connect to a planned new sidewalk between 6th and 7th Street S.
Currently, the sidewalk on both sides are obstructed by utility poles and streetlights, according to the county.
The street projects are in a preliminary design phase and, as such, could change. None have “undergone any detailed survey or design work” or have been approved for funding, according to the county.
More opportunities for community engagement will arise as the designs are further developed, the county says.
(Updated at 4:50 p.m.) After a pandemic-era hiatus, Habitat for Humanity has revived plans to turn a county-owned historic farmhouse into a group home.
Habitat DC-NOVA and HomeAid National Capital Region are propose to restore the exterior of the Reeves Farmhouse in the Bluemont neighborhood, modernize and renovate the interior, construct two new, historically compatible additions and update the landscaping.
The public would still be able to use two acres of parkland around it, including a milk shed, sledding hill and the Reevesland Learning Center gardens.
The nonprofits will be meeting with the Historic Affairs and Landmark Review Board tonight (Wednesday) to discuss plans for the home, which is more than 100 years old. Given the home’s local historic district designation, this board has the authority to review and approve major alterations, per a county report.
The farmhouse sits on the Reevesland property, notable for being the last operating dairy farm in Arlington County before closing in 1955. The local historic designation of the farmhouse and milk shed , from 2004, recognizes the property’s “architectural history and association with the rural and agricultural history of Arlington,” the report said.
“The Reevesland farmhouse is a two-story building with a stone foundation,” the report says. “The wood framing remains as underlying physical evidence of a number of additions and remodeling undertaken over more than 100 years, with the major changes occurring from 1878 to 1911.”
Arlington County purchased Reevesland in 2001 and began searching for appropriate uses for the “endangered” historic place in 2010, putting forth requests for proposals that never led anywhere. During these doldrums, some community groups suggested the county turn the property into a museum or learning center.
High renovation costs convinced the Board to move toward selling it in March 2017, despite some community opposition. Two months later, Habitat came to Arlington County with an unsolicited proposal to reuse the farmhouse for a group home for people with developmental disabilities.
It took three years, but the county and Habitat reached a non-binding letter of intent. One month after that was signed, the nation shut down due to the coronavirus pandemic and the project stalled.
Talks among the nonprofits and L’Arche Greater Washington — which will use the facilities for their core member program — and county staff about the project resumed in September 2022. DPR met with the Boulevard Manor Civic Association in January to provide an update on the project, a neighbor and a spokeswoman for Habitat told ARLnow after publication.
Plans include a two-story addition at the back of the house and a one-story addition at on the southwest side. These will increase the number of bedrooms to seven and provide access and gathering spaces suitable for people with mobility impairments.
A paved area west of the farmhouse will be expanded to provide parking and clearance for Metro Access vans that will provide transportation for future residents. It will also build a stormwater management bio-facility, which could be something like a rain garden.
A tree near the proposed two-story addition will be removed as the addition will conflict with some roots that are critical to its health. Habitat will discuss ways to mitigate this loss with the county’s Urban Forester.
In the county report, Historic Preservation Program staff say they support the project because the addition will be distinct from the historic structure and the landscaping changes will not harm the property’s setting.
“The proposed one- and two-story additions will not detract from the scale or massing of the historic farmhouse, as their designs are compatible with the existing vernacular architecture and can be distinguished from what is historic and new construction,” per a county report.
Sponsored by Monday Properties and written by ARLnow, Startup Monday is a weekly column that profiles Arlington-based startups, founders, and other local technology news. Monday Properties is proudly featuring 1515 Wilson Blvd in Rosslyn.
Enabled Intelligence, a startup founded by a longtime Arlington resident and father, is redefining what inclusion of people with disabilities in the workplace looks like.
And it does so while solving a long-standing labor problem for government agencies and contractors trying to automate their operations with artificial intelligence, says CEO and founder Peter Kant.
Enabled Intelligence employs Americans with disabilities and veterans to do data annotation — teaching computers what images or sounds to look for as they are programmed to sift through large data sets — for government and government-adjacent groups.
“It’s technical, repetitive, problem-solving, somewhat compulsive and relatively asocial work,” he said.
This work has to be done by “puzzle solvers who always want an answer” and U.S. citizens to ensure the data stays secure, Kant says. But government groups, which can’t send data annotation overseas like private companies, often struggle to find people to do the work. Kant ran into this problem while leading SRI International, a research institute with a location in Rosslyn.
So he turned to a “highly skilled, underutilized workforce” within the U.S.: people with certain cognitive differences, who have an edge over neurotypical people, and veterans from intelligence and defense agencies, who have helpful subject-matter expertise.
These two groups face barriers to skilled work because of their disabilities, he said.
“Some were bagging groceries but had a computer science degree from Radford University, and because of their neurodiversity, were not working anywhere else,” he said.
Today, 14 of Enabled Intelligence’s 20-person team have disabilities.
“This is not just a company just for people with disabilities, it’s a mix of people neurodiverse and [neurotypical] people,” Kant said.
The mix helps people with disabilities integrate while demonstrating to people without disabilities that cognitive differences can be assets, he said.
Case in point: New annotators were identifying photos where at least 20% of a vehicle was in the frame. The trainer, who had 15 years’ experience teaching this work, explained that when it comes to close calls, they should play it safe and include the photos.
“One of the annotators, literally just looking at a Powerpoint slide in the training room, said, ‘No, no, no, it’s 17%,'” Kant said.
The trainer said it was close enough to include, but the team member insisted it shouldn’t be included. After the meeting, the photo was measured and sure enough, 17% of the car was in-frame.
Another employee is a whiz at computers who was working at a grocery store while pursuing her cosmetology license. She couldn’t keep up with these two jobs, however, due to a brain injury that was giving her seizures.
At Enabled Intelligence, she has quickly moved up the ranks. After getting her start identifying photos, she has been promoted to identifying audio files in a different language — which she has already picked up.
“She’s been a very valuable asset to us,” Kant said.
Kant says Arlington organizations have helped him hire employees and find advisors who understand how to work with people with cognitive differences.
He found employees through local nonprofit Melwood, which provides vocational training to people with disabilities. One of his advisors is Arlington therapist Ginny Conroy, who runs Social Grace, a local group that coaches people with disabilities and works with businesses to hire and retain neurodiverse employees.
Enabled Intelligence got its start in March 2020 but has been insulated from the worst of the economic impacts of the pandemic because government work has been relatively stable, he said. So far, Enabled Intelligence has booked $2.5 million in business and closed on a seed fundraising round that netted $1 million, lead by the Disability Opportunity Fund.
After being fully remote for more than a year, the company moved into its first, temporary brick-and-mortar office building just over the border in Falls Church (6400 Arlington Blvd). In the new year, Kant has his sights set on a permanent office so employees can handle more secure data and he can expand the company’s operations.
(Updated at 5:40 p.m.) A local nonprofit intends to redevelop and add affordable housing for people with disabilities to its property near Crystal City.
Melwood, which connects people with disabilities with public- and private-sector jobs and opportunities, currently runs a workforce development site from the building at 750 23rd Street S., in the Aurora Highlands neighborhood.
It envisions redeveloping the property into a 100% affordable, 104-unit building with about 30 units set aside for people with disabilities. The five-story building would also house workforce development services and community programming.
“This project builds on Melwood’s ongoing commitment to create more inclusive spaces and empower people with disabilities to live, work and thrive in their communities,” the company said in a statement to ARLnow. “By redeveloping the 23rd St. S. property, Melwood and its partners will be addressing another persistent gap for people with disabilities and their path to independence — affordable, accessible housing.”
Melwood took an early step forward by filing an application for a Special General Land Use Plan (GLUP) study this week. The application says the study is needed because the property falls outside of any adopted county sector plan documents.
The Maryland-based nonprofit — which has operated in Northern Virginia for many years — acquired the Arlington property during its merger in 2017 with Linden Resources, a local nonprofit that similarly provided employment opportunities to people with disabilities. Melwood says it began discussing options for the site with community members and stakeholders in 2020.
“From these conversations, Melwood heard the community’s strong interest in leveraging its facility to support affordable housing in addition to Melwood’s existing program offerings,” which currently support about 500 Arlington residents, the nonprofit said.
The proposed apartment building will address the “significant need” for independent, affordable housing for Arlington residents with disabilities, Melwood says, adding that in 2019, 22% of locals with disabilities lived under the poverty line and couldn’t afford housing.
Melwood requests that the county change the land-use designation from “public” to “low-medium” residential uses so that the property can eventually be rezoned for apartments, according to a letter from Catharine Puskar, a land use attorney representing the nonprofit.
The privately owned property is designated for public uses because, until 1981, the building operated as the former Nellie Custis School.
After the school closed, Arlington County swapped the Aurora Highlands property for a parcel near the Ballston Metro station with Sheltered Occupational Center of Northern Virginia, another work center for people with disabilities, the letter said. As part of the land swap, the county gave the center a special permit to operate on land zoned for public uses.
The property includes the tiny, .8-acre Nelly Custis Park. Long before the current iteration of the park was built, a project some objected to, the occupational center had to grant to the county an open space easement for a public park as part of the land swap.
The public easement and the park will stay, but Melwood is allowed to use the parcel to calculate how many units can fit in its proposed apartment building, Puskar said.
(Updated 4:40 p.m.) County commissioners welcome Amazon’s latest revisions to plans for the second phase of its HQ2 in Pentagon City — but are pushing for more greenery and accessibility.
Designs for Phase 2, also known as PenPlace, are wending through Arlington County’s planning review process.
Phase 2 will be anchored by a lush, futuristic building, dubbed “The Helix,” and feature three, 22-story office buildings, three retail pavilions, a childcare center, a permanent home for Arlington Community High School, 2.5 acres of public green space, multi-modal pathways and underground parking.
Amazon is massaging out the details with county staff, commissioners and community representatives to ready the plans for Planning Commission and County Board review, possibly in the spring. The tech giant has already updated the three office buildings, pathways and green spaces in response to requests for more architectural diversity and plantings.
“The team has been careful reviewing all comments and believe together, we are making PenPlace a better project for the entire community,” said Joe Chapman, Amazon’s Director of Global Real Estate and Facilities, during a meeting last night. “We are committed to the process and to the community.”
Project designers presented their changes during a Site Plan Review Committee meeting last night (Monday). County staff, commissioners and community members asked for better accessibility for people with disabilities, more pedestrian safety features, increased tree canopy and even more plants.
“In general, everyone really likes the presentation and appreciates the refinements to the design from the [Long Range Planning Committee] to now, and from the comments raised in the online period,” Planning Commission member Elizabeth Gearin said. “There’s very strong and widespread appreciation for changes to the design, for the early incorporation of sustainability, biophilia and art.”
Still, commissioners recommended leveling the entrances to underground parking garages so drivers have clearer views of pedestrians. They and county staff asked Amazon to revisit a set of stairs leading from Army-Navy Drive to an “elevated forest walk” on the northern end of the site.
“We’d really like to see the stairs removed and replaced with ramp that everyone can use equally,” Gearin said.
Those suggestions follow up on changes Amazon made this summer to the Army-Navy frontage, “to greatly improve what was seen as a foreboding frontage,” county planner Peter Schulz said.
Others called for more and taller trees throughout the site — not just in the “elevated forest.”
“Anything less than towering oak will look out of place next to 22-story buildings,” said Arlington Tree Action Group member Anne Bodine.
(Updated at 10:50 a.m.) A three-story, county-owned group home in Douglas Park is set for demolition early next year.
In its place, Arlington County will oversee the construction of an environmentally friendly home for six adults with disabilities, at a total cost of more than $5 million.
Built in 1924, the house at 1212 S. Irving Street has undergone several renovations and has operated as a group home since the mid-1970s, according to a county report. Today, the 3,800-square foot, seven-bedroom house accommodates five individuals.
But the county says the house needs to be rebuilt.
“This existing residence is aged and in deteriorating condition and will be demolished and replaced with a new two-story family home of approximately 3,000 [square feet],” according to the project page.
The $4 million construction contract for the net-zero group home was approved by the County Board in October. Demolition could begin in January 2022, as could the installation of a geothermal well field that will power the home’s heating and cooling systems, says Claudia Pors, a Department of Environmental Services spokeswoman.
“Right now the contractor (MCN Build) doesn’t want to begin demolition of the current structure until they have materials to build the new home, and demolition isn’t anticipated to begin for another 6-8 weeks,” she said.
The new home will have six bedrooms, including accessible bathrooms and closets, an area for staff and accessible communal living spaces with built-in furnishings and appliances, per the county report. It will be equipped with various audio-visual technologies to support individuals with complex medical support needs.
“Upon completion, the new home will provide a primary and permanent residence for up to six adults with developmental disabilities,” the report said. “It will be constructed to meet the changing needs of the residents across their lifespans, regardless of physical and behavioral support needs.”
Arlington’s Department of Human Services will operate and maintain the house, while a contracted residential provider will have the primary responsibility for caring for residents.
The new 1212 S. Irving Street will be a net-zero energy residence, meaning it generates as much energy as it consumes. It will also be the county’s first Viridiant Net-Zero certified building, Pors said.
“Some of the construction features include an airtight building envelope and high-performance windows and doors that prevent outdoor air from coming in, or loss of conditioned air; less than 50% of impervious area on the property, so stormwater can be absorbed by the ground naturally; and landscaping with non-invasive species,” she said.
Solar panels and geothermal systems will power the building, while energy recovery ventilators will recover heat or cold air, she said. The interior will also feature LED lighting, low-flow plumbing features and Energy Star appliances.
The project is $900,000 over budget, according to the report.
“The total project budget for the 1212 S. Irving St. Group Home project is $5,205,735,” the report says. “This amount is $900,000 over budget, due to the current unstable market conditions, longer construction duration from lagging supply deliveries, and the addition of a sixth bedroom and a kitchenette to satisfy DHS current programming requirements. The construction cost was over a $1 million more than the independent cost estimate received in November 2020.”
When 26-year-old Paralympic swimmer and Arlington local Alyssa Gialamas retired after 10 years as a competitive athlete, she decided to devote her newfound time to helping other people with disabilities get fit.
After competing in London and Rio for the U.S. Paralympic Team, she found inspiration for her next venture closer to home, where she saw few accessible workout opportunities.
“I started going to the gym and noticing there weren’t a lot of resources for people with disabilities,” said Gialamas, who was born with arthrogryposis, a condition that keeps some of the joints in her leg from moving easily.
The athlete drew on her expertise adapting workouts intended for able-bodied people to put together exercises and classes for people with different physical limitations. Last month, she launched a nonprofit organization called Adapt, Move & Gain Fitness to bring her exercises to people with differing abilities.
Gialamas aims to hold her first class in early November, with one class per month after that while the organization gets off the ground.
“There definitely are not adaptive classes here in Arlington, so I think it’ll be really cool to start here,” she said.
Gialamas said her organization taps into a pressing need in the local disability community, which includes more than 8,700 people under 65, according to the 2020 census.
“People with disabilities are three times more likely to have health issues like diabetes and heart disease,” said Gialamas. “There’s such a need for it. That’s why I started it.”
She developed three types of workouts: fully seated “Adapt” workouts, seated or standing “Move” workouts, and fully standing “Gain” workouts. The exercises are free to access.
“I don’t want people to not use these resources due to price,” said Gialamas. “Money will come through strategic partnerships and donations. There are some partners in the works. It’s been really cool to have so many people be excited about it.”
As for where the classes will be located, Gialamas said she hopes to one day operate her nonprofit from her own space. For now, she plans to host events at gyms around Arlington.
Folks can try her approximately 30-minute workouts at home, too.
“All of the workouts right now are on my website so you can do them anywhere, which is super cool,” said Gialamas. “There’s also a community page so if you do a workout you can post about it.”
Gialamas says it’s important for people with disabilities to have classes tailored to them and places to exercise with each other.
“I think there’s a really cool aspect of seeing other people like you, in any sense, and being able to base it [workouts] off of each other is really cool,” she said. “You don’t have to be a Paralympian to feel good in your body and about your disability.”
This photo of two Arlington teens with Down syndrome will appear on JumboTron screens in Times Square this weekend as part of a visibility campaign for people with the genetic condition.
It depicts Connor Garwood, 18, and his girlfriend Sarah Buzby, 16, at a virtual prom held in the Garwood’s workout room last May. The two met in preschool at Ashlawn Elementary School and have been “inseparable” ever since, said Connor’s mom Suzanne.
She said she submitted the photo of Connor, wearing his dad’s tuxedo and embracing Sarah, because it was sweet.
“Yeah, that picture is cute,” Connor said. “She kissed me.”
The photo, selected from more than 2,100 entries, will be one of 500 in the hour-long presentation this Saturday (Sept. 18).
“Connor and Sarah’s photo will be shown on two JumboTron screens in the heart of Times Square, thanks to the support of ClearChannel Outdoor,” a National Down Syndrome Society (NDSS) press release says.
The video will kick off the Buddy Walk in New York City, hosted by the NDSS, which raises awareness about the disability. The video will also be live-streamed on the society’s Facebook page from 9:30-10:30 a.m. the same day.
“These collective images promote the value, acceptance and inclusion of people with Down syndrome in a very visible way,” said the press release.
The couple’s prom was hosted by Best Buddies, a national organization that matches kids and adults with disabilities with high school and college students without disabilities. The pandemic-era dance gave Connor, now a Yorktown High School graduate, and Buzby, a senior at Washington-Liberty High School, a chance to see each other during the lockdown.
“It was fun. We danced,” said Connor, who then showed off some of his signature moves.
For Connor, being on the Jumbotron means demonstrating that he is a capable adult. This year, he started the Program for Employment Preparedness at Arlington Career Center, which partners with employers and worksites to transition adults with differing abilities to life after school.
“I want people to know that I know stuff,” he said.
Suzanne said the program teaches him “how to ride the ART bus and the Metro and cook and balance a checkbook, which frankly more colleges ought to teach.”
The video and walk also preview Down syndrome Awareness Month in October, a month that Suzanne uses to highlight the challenges of living with or caring for someone with Down syndrome.
“I try to post things… that, if people knew, they could help with advocacy and make changes to the law that would make life easier for our kids,” Suzanne said.
She is watching some bills in Congress right now that could make it possible for people like Connor to earn more than a sub-minimum wage. Additionally, caps on income and assets for those with Down syndrome to access federal programs like Medicaid may disincentivize seeking higher-paying employment, she said.
October is also a time to humanize people with the condition.
“People think people with Down syndrome have X and Y characteristics and I don’t think that’s necessarily true,” she said.
Connor is a social media maven who enjoys exercising, especially kickboxing, saying he could protect Sarah in an altercation with his skills. But in a fight, Sarah would likely utilize her charm and humor.
“She’s cute, kind and funny and she makes jokes and dances with her dolls,” said Connor.
Twice a day, a group of adults with disabilities can be seen walking near Gilliam Place, an affordable housing building where they live.
On a Tuesday morning in May, they showed ARLnow their stomping grounds. A recent rain turned everything a bright green, and cicadas droned in the background.
This little community on Columbia Pike was the first to be established by the volunteer-run nonprofit Our Stomping Ground, which connects adults with intellectual and developmental disabilities to independent living opportunities and helps them build communities in Northern Virginia.
On the walk, resident Max Loftis, who has autism, said living at Gilliam Place is a great experience.
“I get a lot of opportunities to cook and I’ve made great meals,” he said. “I like the feeling of independence.”
In a different decade, Loftis could have been placed in a state-run institution where he may have been deprived of the ability to cook for himself.
The Commonwealth used to institutionalize people with disabilities across five state-run, hospital-like facilities that housed 6,000 people. According to some reports, residents lacked the autonomy to choose their meals or what to watch on television. In 2011, the DOJ concluded an investigation that found Virginia was one of five states denying residents their right — enshrined in the Americans with Disabilities Act — to community-based services in integrated settings.
In 2012, the Commonwealth settled with the DOJ for $2 billion, agreeing to close four of its five institutions and provide for people with disabilities in more inclusive ways.
The friends at Gilliam Place have an array of disabilities. Some cannot speak, or cannot control what they say, and will instead point to letters on a chart to communicate. One developed a tic disorder from a traumatic brain injury. But they all participate in activities with other building residents and members of the disability community, take on jobs, and live in apartments with a sibling, an aide or someone with a complementary disability.
“We have a long way to go, but this is what it should look like,” said Our Stomping Ground (OSG) Executive Director and Founder Paula Manion, who joined the friends that day.
OSG works with Arlington County and the state to identify people with intellectual and developmental disabilities who are ready to move into independent living. It also works with local affordable housing developers to find units that have been set aside for people with disabilities.
The nonprofit is building a similar community at Queens Court, a new affordable housing complex in Rosslyn. Later this year, The Waypoint at Fairlington in Alexandria will debut its community and two other buildings in Northern Virginia that are set to open in 2023.
“We’re serious about demonstrating that we’re about improving the lives of our kids and everyone in the building,” said Donna Budway, who organizes activities at the apartment building and with the larger disability community. “This is the most inclusive experience they’ve had in their lives — more than schools, preschool and church.”
Manion founded the nonprofit as City Center NOVA in 2019, one year after she and her husband began looking for a place their adult son could live independently. Despite having a full-time job, he did not make enough money to live on his own, and he could not drive. They modeled City Center on a community in Rockville, Maryland, and renamed the organization “Our Stomping Ground” last November.
Ben McGann, 25, was part of the first group to move into Gilliam Place in December 2019, after the apartment building opened in August. He has known fellow residents Emma Budway (Donna’s daughter) and Huan Vuong since Pre-K. Both he and Vuong have autism and are non-verbal, while Emma is an unreliable speaker, meaning what she says and what she actually would like to communicate are different.
When Ben aged out of school-provided services, his mother Bertra thought he would always live with her. After learning how to communicate with a letter board, however, Ben one day told his mother that he wanted to live on his own.
“We were floored,” Bertra said.
