Rep. Don Beyer this week introduced the COVID-19 Long Haulers Act, which would authorize and fund research at the National Institutes of Health (NIH) and the Patient-Centered Outcomes Research Institute (PICORI) to benefit so-called “long haulers,” people who experience long term effects of COVID-19 infections. From the beginning of the pandemic medical researchers have documented a wide array of lingering conditions affecting patients long after they recover from initial infection, but leading public health officials say more research is needed to fully understand and respond to the phenomenon.
“Over ten months after coronavirus was first documented in the United States, some of the worst suffering is still being borne by people who got sick and recovered from their initial infections early in the year,” said Beyer. “Given the alarming pace of the virus’ spread right now, we may see significant proliferation of individuals suffering long term effects of coronavirus infections. We need to do everything we can as soon as we can to help those people, and to get a handle on this problem. My bill would make major investments in research funding at leading institutions, and make this a major priority for American medical research.”
Beyer serves on the House Committee on Ways and Means, which has partial jurisdiction over health care. He previously led successful efforts to reauthorize and fund the Patient-Centered Outcomes Research Institute (PCORI), spearheaded a House push to fund the Agency for Healthcare Research and Quality (AHRQ), and is the sponsor of legislation to ensure data transparency at the CDC during the COVID-19 pandemic.
Text of the COVID-19 Long Haulers Act is available here.